Post on 23-Jan-2016
WORLD PSORIASIS DAY29th October 2010
World Psoriasis Day 2010Día Mundial de la Psoriasis 2010
ASSOCIATIONS
•Chile
•Colombia
•El Salvador
•México
•Venezuela
•Argentina•Puerto Rico
•Ecuador
•Panamá
World Psoriasis Day 2010
ASSOCIATIONS
•UNAPSO, União Nacional das Associações de Brasil
•Amazonas (Brasil)
•São Paulo (Brasil)
•Rio de Janeiro (Brasil)
•Bahia (Brasil)
•Ceará (Brasil)
•Brasília(Brasil)
•RG do Sul (Brasil)
World Psoriasis Day 2010
SNAPSHOT
LATINAPSO had for WPD 2020 :• 39 urban actions (56% more than in 2009)• 60 TV apperarances (50% more than in
2009)• 70 radio appearances (27% more than in
2009)• 103 notes and interviews on written press
and internet (34% more than in 2009)
World Psoriasis Day 2010
SNAPSHOTActivities LATINAPSO WPD 2009-2010
25
40
55
77
39
6070
103
0
20
40
60
80
100
120
Urban actions TV Radio Written press andinternet
20092010
World Psoriasis Day 2010
URBAN ACTIONSAll Associations in LATINAPSO together prepared 39 urban actions for WPD (56% more than last year) on 19 cities
• Argentina: Córdoba, Santa Fe, Tucumán, Buenos Aires, Mar del Plata
• Brasil: Brasilia, Fortaleza, Porto Alegre, Rio de Janeiro, Salvador de Bahia, São Paulo
• Colombia: Cali, Manizales y Medellín• Ecuador: Quito• El Salvador: San Salvador• Panamá: Ciudad de Panamá• Puerto Rico: San José• Venezuela: Caracas
World Psoriasis Day 2010
URBAN ACTIONS• Live music with delivery of leaflets and T-shirts, in
Salvador de Bahia (Brasil),• Public party with traditional music and theatre in
Quito (Ecuador)• Events for doctors, patients, families and press in
Salvador de Bahia, as well as conference-talks at public hospitals in Fortaleza, Argentina,
• Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia).
• Awareness walk in Fortaleza (Brasil), Quito (Ecuador) and Panamá.
World Psoriasis Day 2010
URBAN ACTIONS• Information stands for the distribution of
informative material and medical advice in the city center in Porto Alegre (Brazil) in Rio de Janeiro (Brazil)
• Delivery of free information at bus stops in San Salvador (El Salvador)
• Educational meeting, press conference at open air, in front of the beach in Puerto Rico
• Inline skating in group in Buenos Aires and Mar del Plata (Argentina)
World Psoriasis Day 2010
MEDIA
All together, Associations member of Latinapso were present on:
•49 TV channels•45 radios•34 newspapers•18 internet sites (excluding
Associations` websites and Latinapso website)
World Psoriasis Day 2010
TELEVISIONAll together LATINAPSOAssociations were 60 times on TV (50% more than previous year) in 49 channels of Latin America:
• Argentina: América, América 24, TN, Canal 26, Canal 7, Crónica, Metro, canal local de Santa Fe, Canal 8, Canal 10, Canal 5 Supercanal, Canal 12 CCC, Canal de Cable San Cayetano
• Brasil: Tv Globo , Tv Bandeirantes,Tr Rit, TV Diário, TV Verdes Mares, TV União, TV Cidade, RBS TV, TV Educativa, TV Urbana, TV Senado
• Colombia: Caracol TV, Telepacífico, Televida, Canal 8• Ecuador: RTS , Gama TV, TC Televisión, Hoy TV• El Salvador: Canal 2, Canal 4, Canal 10 (Televisión Nacional), Canal 8• Panamá: Telemetro, Canal 23, Canales de Cable, TVN, RPC, Hossana• Puerto Rico: Wapa TV, Tele ORO• Venezuela: Publi Tips, Venevisión, Venezolana de Televisión, Televen
World Psoriasis Day 2010
RADIOAll together LATINAPSOAssociations were 70 times on the Radio (27% more than previous year) in 45 stations of Latin America:
• Argentina: AM: LU9 Radio Mar del Plata- FM: 98.5 Radio "Brisas“, LV7 Y LV12 en sus frecuencias AM y FM- Metropolitana FM, LT9 y FM sol sport, María Córdoba, Radio Rosario, Radio 2 Rosario, Cadena 3, Radio Del Plata, Radio10, FM Millenium, Radio Palermo,
• Brasil: Metrópole FM, Rádio Guaíba, Band News, Rádio ABC, Rádio Verdes Mares, Radio Globo,Radio Melícia da Imaculada,Radio Capital
• Colombia: Caracol Radio, LA FM, Todelar, Red Sonora• Ecuador: EQUASHIRYS - IRFEYAL, QUITO, La Luna• El Salvador: Radio Luz, Radio María• México: Educación, Radio Centro, IMER• Panamá: RPC Radio, La Exitosa;KW Continente, Radio María,
Fabulosa Stereo,Omega Stereo, Radio Nacional• Puerto Rico: Univision, WKAQ, Radio ORO, Radio Isla• Venezuela: JAZZ 95.5, Kuerpo Sano FM
World Psoriasis Day 2010
WRITTEN PRESS AND INTERNET
All together LATINAPSOAssociations were named or interviewed 103 times on written press and internet (34% more than previous year) in 34 newspapers and 18 sites of Latin America:
World Psoriasis Day 2010
OTHER ACTIVITIES
There were as well:• 47 open conference-talks• 26 participation at Fairs and Congress• 26 interactive workshops for general public• 17 additional activities: presss conferences,
presentation of videos and books about psoriasis, premiere of institutional videos of some Associations, posters and stickers stamping, days of free medical advice
World Psoriasis Day 2010
IDEAS FROM THE WORKSHOSP ABOUT WPD FROM 2nd
MEETING OF LATINAPSO (May 2010)
• All Associations said to have taken advantage of the ideas gathered at the Brainstorming sessionat the 2nd Meeting of LATINAPSO
• Some Associations copied the slogans, other the ideas for urban actions (balloons, awareness walks) or activities for children
• To be remarked: all Associations are aware of the need of effectively communicate their message, adapting it depending on the public (patients, doctos, industry, media, etc.)
World Psoriasis Day 2010
CHALLENGES FOR WPD 2011
• Associations point as challenges for next year:– Professional training for actions with
governments (petitions, etc.)– Having lager budget for more urban actions– Interactive workshop for media at 3rd Meeting
of Latinapso– Strategy of communication at Latinapso on the
whole region– Begin in 2010 to prepare the WPD 2011
World Psoriasis Day 2010
SUMMARY OF ACTIVITIES
Activities from all Associations member of Latinapso for WPD 2010 under the slogan:
Childhood psoriasis, a challenge for all
World Psoriasis Day 2010
BRASIL – UNAPSOAsociación de Psoriasis
de Brasil
• Event in the Brazilian press Association, where there were presented films about the disease, with conferences of doctors and patients.
• The president of UNAPSO BRAZIL gave a speech to present the newly created UNAPSO.
World Psoriasis Day 2010
BRASIL – ABRAPSEAsociación Brasiliense
de Psoriasis
• Information activitiy in coordination with the Secretariat of Assistência Médica Social – (Sams), Hospital Universitário de Brasília- HUB, Sociedade Brasileira de Dermatologia – SBD y Associação Brasiliense de Psoríase – (Abrapse). Place: Senado Federal (National Congress)
• Release of the 4th edition of brochure “Combatendo
a psoríase com informações” (Fighting psoriasis with information)
World Psoriasis Day 2010
BRASIL – ABRAPSEAsociación Brasiliense
de Psoriasis
World Psoriasis Day 2010
BRASIL – ABAPPAsociación Bahiana
de Portadores de Psoriasis
• Urban action: Live music with delivery of leaflets and T-shirts
• Public event for – Doctors– Patients, family and friends– Health Authorities– Press– SBD - Sociedade Brasileira de Dermatologia.
World Psoriasis Day 2010
BRASIL – ACEPPAsociación Cearense
de Portadores de Psoriasis
• Medical conference-talks• Awareness walk• Closing event at public hospital
World Psoriasis Day 2010
BRASIL – APAMAsociación de Psoriasis
de Amazônia
Educational event for patients and general public at Fundação Alfredo da Matta in Manaus city
World Psoriasis Day 2010
BRASIL – PSORISULAsociación de Psoriasis
de Rio Grande do Sul
• Conference-talk and free activities for patients• Awareness week for psoriasis patients• Free delivery of guide “Psoriasis, uma questão da
pele” (Psoriasis, a matter of skin)
World Psoriasis Day 2010
BRASIL – PSORISULAsociación de Psoriasis
de Rio Grande do Sul
• Speech at Camara de Vereadores de Porto Alegre (local government)
World Psoriasis Day 2010
BRASIL – PSORIERJAsociación de Psoriasis
de Rio de Janeiro
• Information stand at Praça da Cinelândia in the city centre, with doctors and patients delivering educational brochures and leaflets for general public.
World Psoriasis Day 2010
BRASIL – AAPPAsociación de Apoyo a los Portadores
de Psoriasis de São Paulo
• Urban action with information and clowns at the city centre
World Psoriasis Day 2010
BRASIL – AAPPAsociación de Apoyo a los Portadores
de Psoriasis de São Paulo
World Psoriasis Day 2010
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia
• Meetings for patients• Free conference-talks in three cities: Manizales,
Medellín y Cali.• Activities for childen at hospitals• Urban actions: Street parade and patining on bare
feet in Medellín, Manizales y Cali (Colombia)• Delivery of free gifts: T-shirts of Teddy bear and
Teddy-bears
World Psoriasis Day 2010
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia
Urban actions: conference-talks and activities at children hospitals
World Psoriasis Day 2010
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia
Urban Actions: street parade and foot-painting
World Psoriasis Day 2010
COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia
Premiere of insitutional video of FUNDAPSO
http://www.youtube.com/watch?v=1GS8SyNoXbc&feature=player_embedded
World Psoriasis Day 2010
EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador
• 8 educational and medical conference-talks• Ads and interviews on TV and radio• Urban actions• Closing event, with premiere of institutional video
World Psoriasis Day 2010
EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador
World Psoriasis Day 2010
EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador
Institutional video:http://vimeo.com/16337198
Video of the event:http://www.youtube.com/watch?v=WI1SAo4Hodw&feature=player_embedded
Inteviews for the WPD:http://www.youtube.com/watch?v=UU5M9jkJZck&feature=player_embedded
World Psoriasis Day 2010
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda
al Paciente de Psoriasis
World Psoriasis Day 2010
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda
al Paciente de Psoriasis
• Free educational meeting– Objective: to educate about the disease, existing
treatmente as well as offer tools for improving quality of live and overcome rejection towards social integration
– Participation of dematologists and reumathologists
World Psoriasis Day 2010
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda
al Paciente de Psoriasis
• Press conference and urban action at open air, at Ventana al Mar en San Juan
World Psoriasis Day 2010Día Mundial de la Psoriasis 2010
PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda
al Paciente de Psoriasis
• Report “The efectos of psoriasis”, on Wapa TV: http://www.wapa.tv/noticias/salud/los-efectos-de-la-psoriasis/20101114185450
• Article about urban action of APAPP at Notisalud Wapa TV: http://wapa.tv/noticias/salud/dia-mundial-de-la-psoriasis/20101030181137
World Psoriasis Day 2010
MÉXICO – AMCPSOAsociación Mexicana
contra la Psoriasis
• 7th National Congress for Psoriasis patients and families
• SIMPOSIUM ABOUT PSORIASIS, for healthcare professionals
• Press conference
World Psoriasis Day 2010
MÉXICO – AMCPSOAsociación Mexicana
contra la Psoriasis
Simposium for healthcare
professionals
World Psoriasis Day 2010
MÉXICO – AMCPSOAsociación Mexicana
contra la Psoriasis
Congress for psoriasis patients
and families
World Psoriasis Day 2010
ECUADOR – FEPSOFundación Ecuatoriana
de la Psoriasis
• Conference-talks• Urban actions• Media• Closing public event
World Psoriasis Day 2010
ECUADOR – FEPSOFundación Ecuatoriana
de la Psoriasis
World Psoriasis Day 2010
PANAMÁ – FPPFundación de Psoriasis
de Panamá
Drawing contest for children – 2nd prize at IFPA
World Psoriasis Day 2010
PANAMÁ – FPPFundación de Psoriasis
de Panamá
• Awareness walk
World Psoriasis Day 2010
VENEZUELA – AVEPSOAsociación Venezolana de Psoriasis
• 29th October, 14:00h• Auditorium IPP at UCV • Open forum and conference-talk with two
excelent specialists in child psoriasis and psoriasis arthritis
• Free entrance
World Psoriasis Day 2010
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
• Children drawing contest• Urban actions in five cities• Conference-talks for patients, doctors and
general public, in 5 cities• Petitions to government authorities• 58 appearances at media
World Psoriasis Day 2010
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
Petitions to authoritiesDrawing contest for children
World Psoriasis Day 2010
4
“Do not let psoriasis tear us apart”
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
World Psoriasis Day 2010 Tucumán
Santa Fe
Córdoba
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
Urban actions in five cities
World Psoriasis Day 2010
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
Buenos Aires
World Psoriasis Day 2010
ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis
Mar del Plata